Hello to everyone in the Epilepsy Foundation of Houston, TX. I’ve been part of the foundation always to offer my support and encouragement to everyone with epilepsy. So for today, I want to share a little bit about myself and what I feel is very important to me during my continuing journey with my epilepsy and my learning experiences as well.
So to begin I want to let everyone know that I’ve had epilepsy since I was diagnosed at the age of 17 years old and I’ve just turned 51 on the 3rd of this month. My first seizure I’ve ever had was the grand mal seizures in which was the most severe and scary seizure I’ve had. But to make this testimony a little short I only had grand mal seizures for a few months or so and now the only seizures I deal with are absence seizures which only last a few seconds but as me or everyone else who is familiar with it once it’s over you may not remember anything. As for medications I’ve tried many different medications and combinations as well in order to help reduce and control my seizures. By having the very best neurologist who has always been helpful especially when I explain what I’ve been through after many medications I’ve tried he suggested the best and only option that may be more helpful is to have left temporal anterior lobectomy in order to take care of a scar on the left side of my brain and that was why I was having seizures. Anyway the surgery took more than usual time it’s supposed to which is about 4 hours but they wanted to be very careful with my type of surgery and prevent any complications so it took 7 hours for them to complete my surgery. Now I’ve learned that there are many different types of epilepsy, seizures, medications, symptoms and most importantly side effects as well. One of the most difficult parts of this has to do with our memory loss and not remembering things especially important information. As for myself my memory wasn’t that good but before my surgery they explained that the most difficult risk factor is that it can cause my memory to be worse than before so it’s important to take notes and even write down all important information you may need to remember. Now as my journey continues, I want to let the members of the foundation know that I’ve been seizure free for about 4 years now and the best thing for me is to just continue to be active, eat healthy foods, exercise, take medications but most of all to always stay strong and positive and to offer support and encouragement to everyone with epilepsy. As for my own support group I created on Facebook messenger it was created quite a long time now and I offer support and encouragement to all members who has had epilepsy or those who are newly diagnosed as well and for those who would love to learn more about epilepsy and other related things that has to do with epilepsy that’s what I do. My main goal is to help those who are having a difficult time dealing with epilepsy or they just want to know more about this condition so I’ve been very happy to be able to help everyone with different types of epilepsy and seizures, symptoms, medications, and side effects and treatments as well. So supporting and offering advice or encouragement is the most important way to help all that are dealing with the diagnosis of epilepsy! I want to thank the Epilepsy Foundation of Tx who I’m thankful for accepting my testimonial to share with everyone who has epilepsy.
