Transition to adulthood is an important time in a teen’s life. Teens are learning how to navigate their growing independence, developing their identity, and creating social connections. Teens living with epilepsy are no different. This is an important time for teens living with epilepsy because they are also learning more about managing their health. There are a number of things teens and parents can do to make learning how to manage health an empowering experience. When teens are empowered, they can have greater success as they learn to take care of themselves. Resources included on this page will be helpful to teens and parents/caregivers as they go through the transition to adulthood.
Epilepsy Foundation: About Teens with Epilepsy Caring for teens with epilepsy requires special patience and understanding. For children entering their teens with good self-esteem and a sense of independence, the impact of epilepsy can be minimal. But epilepsy can aggravate or create problems of low self-esteem, dependency, mood fluctuation, or behavioral difficulties in adolescents.
Child Neurology Foundation The Child Neurology Foundation offers support to medical professionals, families of children with neurological conditions, and children and youth. Resources for patients and parents are available on their website.
Got Transition Got Transition Youth and Family Resources Health care transition is the process of getting ready for health care as an adult. During childhood, parents usually help with medical needs—they call for appointments, fill out forms, and keep track of medications. As youth get older, managing medical needs becomes their own responsibility. Achieving this independence requires an organized transition process to gain independent health care skills, prepare for an adult model of care, and transfer to new providers. There are several steps you can take to make sure the transition to adult health care goes smoothly. Be sure to also check out our Resources section for additional information.
Texas Parent to Parent Texas Parent to Parent (TxP2P) is committed to improving the lives of Texas children who have disabilities, chronic illness, and/or special health care needs. TxP2P empowers families to be strong advocates through parent-to-parent support, resource referral, and education. In addition, TxP2P educates professionals about the unique needs of our children with the goal of improving care and opportunities for our children. Lastly, TxP2P is dedicated to championing the efforts of a diverse set of parent support groups and advocacy on behalf of our children’s well-being.
Navigate Life Texas This website is especially for families and parents of children with disabilities or special health-care needs and is designed to offer support, inspiration, resources, and links to service available. Texas Project First: Families, Information, Resources, Support, and Training Navigate Life Texas Epilepsy page
Texas Project First: Families, Information, Resources, Support, and Training A project of the Texas Education Agency committed to providing accurate and consistent information to parents and families of students with disabilities. They offer information based on age of the student
Disability Rights Texas Their mission is to protect the rights of people with disabilities in a variety of ways — advocating on their behalf through the legal system, championing important laws and policies that advance their rights, and supporting the day-to-day service issues that affect the quality of their lives.
National Center on Secondary Education and Transition (NCSET) NCSET coordinates national resources, offers technical assistance, and disseminates information related to secondary education and transition for youth with disabilities in order to create opportunities for youth to achieve successful futures.
Texas Workforce Solutions-Vocational Rehabilitation Services Student and Youth This division of the TWC serves youth and students with disabilities to help prepare for post-secondary education and employment opportunities. Services are eligibility and need based. Transition Services Summary
The Arc of Texas The Arc is an advocate for all people with intellectual and developmental disabilities and their families and the premier provider of the supports and services people want and need. Arc Information and Resources
211 Texas 2-1-1 Texas is a program of the Texas Health and Human Services Commission, is committed to helping Texas citizens connect with the services they need. Whether by phone or internet, our goal is to present accurate, well-organized and easy-to-find information from state and local health and human services programs. 2-1-1 Texas is a free, anonymous social service hotline available 24 hours a day, 7 days a week, 365 days a year. No matter where you live in Texas, you can dial 2-1-1, or (877) 541-7905, and find information about resources in your local community. Whether you need help finding food or housing, child care, crisis counseling or substance abuse treatment, one number is all you need to know.
Live It! Youth Transition Program
The Live It Youth Transition program is an educational program promoting independence, individuality, and growth in teens living with epilepsy. The program is available to teens 12 to 19 years old and their parents or caregivers. The Epilepsy Foundation Texas and the Epilepsy Foundation Central and South Texas work in partnership to make this program possible.
We offer a supportive environment for teens to meet and get information about managing their seizures and preparing for adulthood. Teens have a chance to get to know other teens living with epilepsy and learn ways to navigate life with epilepsy. Parents will have the opportunity to get tools and advice on parenting their teen who is living with epilepsy as they transition into adulthood.
Our meetings are held once a month in Dallas, Houston, San Antonio, and Austin from 10:30am to 12:30pm, October – May. Parents are welcome to join – even if their teen can’t make it.
Announcements will also be made via social media so please like us on Facebook and follow us on Twitter to receive the most up-to-date info. To register and get email updates, email the Live It Transition Program Coordinator at Naomi Meier.