History of Epilepsy Foundation Texas - Goals & Mission

Rich History for Epilepsy Foundation Texas

Donna Stahlhut – Founder
Donna Stahlhut – Founder

📜 Our History: Where Empowered Journeys Began

The history of the Epilepsy Foundation Texas is a testament to the power of community, advocacy, and unwavering dedication to ensuring that In Texas, no one faces epilepsy alone.

The Founding Story

The journey began in 1983 with Donna Stahlhut. After her son was diagnosed with epilepsy, Donna faced an “utter lack of support” and struggled to find information, resources, or a way to connect with other families. Driven by her frustration, she took a proactive stand, installing a phone in her kitchen—the starting point for establishing a vital network of information and support.

This grassroots effort led to the founding of the Epilepsy Foundation of Southeast Texas.

Growth and Consolidation

Over 40 years, the organization strengthened its reach and impact:

  • 2008: The name changed to the Epilepsy Foundation of Texas after expanding service to North Texas when we merge with the local Dallas/Fort Worth area office.

    2011: The Foundation combined efforts with the respected 38-year-old Epilepsy Foundation West Texas.

This expansion created a stronger, more united force, now serving 176 counties in the state of Texas.

🎯 Mission, Vision, Goals, and Programs

Mission Statement

To improve the lives of people affected by epilepsy through education, advocacy, research, and connection.

Vision Statement

In Texas, no one faces epilepsy alone

Organizational Goals

The Foundation strives to:

  • Provide experiences to enrich the lives of individuals and families living with epilepsy.

  • Deliver easy access to reliable information, resources, and support services

  • Ensure access to specialized medical care for those most in need.

Audience and Programs Served

We provide programs and services to children, adults, and families affected by epilepsy across 176 counties in North, Southeast, East, and West Texas.

The four main program categories are:

  1. Education and Support Services: Includes school, community, and professional education; support groups, mental wellness programs, and advocacy.

  2. Camps: Two summer camps for youth and one family camp.

  3. Specialty Medical Care: Five medical clinics across the state providing neurological care, diagnostic testing, and anti-seizure medications to uninsured and underinsured people with epilepsy.

  4. Mental Wellness: Programs designed to provide crucial support and practical skills, such as stress management and coping strategies.

✨ Key Achievements and Leadership

Community Impact (Annual)

The vast majority of our services are provided free of charge:

  • We serve over 130 children and teens each summer through our camps.

  • More than 350 individuals receive specialty medical care (physician visits, diagnostic testing, and vital medication).

  • More than 10,000 people each year receive support, advocacy, and education services.

Legislative Victories

The Epilepsy Foundation Texas has led legislation to benefit people with disabilities over the years.

  • Compassionate Use Act (2015): The Foundation successfully advocated for the Compassionate Use Act in 2015, which allows qualified Texans with intractable epilepsy to legally access low-THC cannabis products, expanding treatment options and improving quality of life for those most in need.
  • Sam’s Law (2019): We worked hard to pass Sam’s Law (HB 684) in May 2019, making schools safer for the 50,000 children living with epilepsy in Texas. This law requires all Texas public school personnel who have regular contact with students to be trained in seizure recognition and first aid.
  • Health TEKS Revision (2020): In November 2020, the Texas State Board of Education voted to adopt Health Education revisions which include epilepsy awareness and seizure first aid education for grades 2 through high school, starting in the 2022-23 school year.

    Organizational Governance

    The Foundation is governed by a Board of Directors, made up of officers of two local boards (North and West Texas and South and East Texas), who establish policies and oversee financial operations, planning, and program activities.

    The Board sets the strategic direction, acts as prudent trustees of contributed funds, and serves as a leadership example through service and personal financial contributions.

    This incredible legacy continues under the leadership of Chris Justl, our Chief Executive Officer, ensuring that the mission is carried forward to meet the varied needs of people with epilepsy and their loved ones.

    Support Our Mission

    Of the many ways to donate to the Epilepsy Foundation Texas, simple gifts are often the best. Honor a loved one with a memorial gift. Create a lasting gift by planning ahead with your estate. Set up recurring donations on a monthly or yearly basis. To see a variety of ways to support, please visit Ways to Give or contact the Epilepsy Foundation Texas today.

    Donate Online Now

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    The Epilepsy Foundation of Texas is a 501(c)3 not-for-profit organization with tax-ID number 74-2141084.

    If you prefer to send a check, you may make it payable to

    Epilepsy Foundation of Texas:
    2401 Fountain View Drive, Suite 900
    Houston, Texas 77057

    Epilepsy affects millions, but together, we create care that comforts, community that connects, and hope that heals.

     
    Your gift today provides essential support for Texans living with epilepsy. Every dollar given helps build a world where no one faces epilepsy alone by funding local programs like free camps and medical clinics.
     

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