Blog

Blog

Medication – What’s the Point?

If there is one thing people have said to me more than anything else over the years, it is, “If you’re still having seizures, why don’t you change your medications? Or why do you take them at all? You know eating eggs is supposed to...

Things to Know When a Loved One is Diagnosed with Epilepsy

It is life changing to be diagnosed with epilepsy, but it is also life-changing for their families. There are a host of things that may run through their mind immediately, realities that take time to set in as they meet with doctors, try out treatment...

Epilepsy and Financial Independence: Struggling with Work

I remember in middle school exactly what my vision of the future was after college. I was an excellent student at the time. I remember seeing myself working for a large company and I was going to earn enough money that I would never be...

Lying

I’ve mentioned multiple times that open and honest communication with doctors and family members is critically important to getting the care you need when you have epilepsy. I believe it is important to disclose to your doctor the number of seizures you have had, how...

Denial

My mom said something to me in a text the other day about my history with epilepsy. “I think you were so determined to ignore [your diagnosis] that you wouldn’t remember anything when we went to the doctor.” I talk about a lot of ways...

Auras : What Mine Are Like and Why They’re Important

Auras are the feeling one gets before having a seizure, a warning sign. There are different “types” of auras, but the ones I have are visual. Not everyone experiences auras before having a seizure. I am glad I do. Unreal I’m not sure how auras ‘feel’ for...

Things to Expect After You Receive an Epilepsy Diagnosis

If I am being entirely honest, I don’t remember the day I was diagnosed with epilepsy in 2001. It’s all very fuzzy to me, likely because my medication at the time wasn’t right for me. I spent many of the years that followed in a...

My First Seizure

I never want to romanticize having epilepsy in any way, as there is nothing desirable about it, but there are three seizures that I really remember in my life. My first seizure is one of them. The Circumstances Saying I remember seizures is a bit misleading. What...

Discussing Epilepsy

It’s Complicated In discussing epilepsy, it is important to recognize its variety and complexity. I will reference my auras and talk about *auras, but will absolutely keep in mind that not everyone with epilepsy has auras. I will talk about my experience of a *seizure and...

Let Me Introduce Myself

Hi! My name is Kate Folladori. I was diagnosed with epilepsy in 2001, when I was 15. At 14, I had my first seizure while away at summer camp. My parents drove to Austin (I can only imagine what they were thinking) and picked me up...